Contribute¶
Researchers¶
Survey¶
Please first fill out the VERY brief survey about the consent forms for your studies: http://goo.gl/forms/2lsmYcOsAs . It has only few questions and should take only a few minutes to fill out. Even if your Consent form doesn’t include yet any provision for data sharing – your contribution would be very valuable, although would consist of simply saying “No”.
Additional materials¶
Please report to GitHub issues or even send a new pull request via GitHub pull requests with
- samples of consent forms allowing re-distribution/deposit to public archives
- relevant publications and discussions
- changes/recommendations for the ultimate consent form formulation
IRB committee members¶
We would welcome your feedback very much, in particular
- what concerns on public sharing of neuroimaging data you might have if any identifiable information removed (e.g. skull stripped) and subjects agreed to those terms?
- what particular consent form composition and wording aspects would you recommend? (e.g. “make it an explicit additional form requiring a separate signature”) and why?
Contact information¶
- directly via email open-brain-consent@datalad.org
- GitHub issues page