Please first fill out this VERY brief survey about the consent forms for your studies: http://goo.gl/forms/2lsmYcOsAs . It only has a few questions and should take a few minutes to fill out. Even if your consent form doesn’t yet include any provision for data sharing, your contribution would be very valuable (although it would consist of simply saying “No”).
We’re always looking for new materials to add to this shared neuroimaging resource. In particular, we’re looking for:
- Samples of consent forms allowing re-distribution/deposit to public archives
- Relevant publications and discussions
- Changes/recommendations for the ultimate consent form formulation
To add to the materials on this site, please open an issue on our GitHub issues page or send a new pull request via GitHub pull requests. Whether or not you should open an issue or make a pull request depends on the type of contribution you are making.
For sample consent forms and links to relevant publications, please make submissions exclusively via the GitHub issues page. When submitting consent forms, please include a full URL to the form and the desired filename you’d like to see it represented as on the Sample consent forms page. Note that for the URL you submit, persistent URLs such as DOIs are ideal, since these will not require frequent updates to this site in the event that a link moves. If a consent form does not have a DOI associated with it, an Internet Archive Wayback Machine saved page also works well in practice.
Changes to the ultimate consent form should be made via GitHub pull requests.
IRB committee members¶
We would welcome your feedback very much, in particular:
- What concerns on public sharing of neuroimaging data you might have if all identifiable information is removed (e.g. skull stripped) and research participants agreed to those terms.
- What particular consent form composition and wording aspects would you recommend (e.g. “make it an explicit additional form requiring a separate signature”) and why?
When using our template forms, you can mention that your ethics followed the OBC recommendations: Open Brain Consent working group (2021). The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data. Human Brain Mapping, 1-7 https://doi.org/10.1002/hbm.25351.
Tackling these challenges requires diverse types of contributions.
Every contribution is very welcomed and we try to acknowledge as many as we can.
For our repository, the allcontributors bot recognizes the contributors to this initiative - be this in the form of feedback, further content, in-person discussions, review, maintenance or many more contribution types.
You can find an overview of the wonderful people that contributed to this project in the associated GitHub repository.
Maintainers are encouraged to alert the allcontributors bot if they are aware of a yet unrecognized contribution by commenting on issues or PRs with a bot invocation that follows the structure
@all-contributors please add @jane for code feedback review.